Welcome to MeBO Research
Body Odor & Halitosis webinars : Spring 2010
Everyone welcome : Donations needed
MeBO Research is organising a webinar with body odor and halitosis experts, hoping to set a precedence, which will be used to educate and to promote further research. It looks like quite a few TMAU/FMO3 experts will be speaking via internet video. Everyone can watch online. To enable the event to go ahead, donations are very welcome to cover the cost of the program used. More details will soon be forthcoming. A ring-fenced fund for the event has been set up. Every $10 helps (or more). Possibly $200 may be needed. Donations or sponsors are welcome.
Easiest way to send donations :
go to your paypal account and send donation as 'a gift' to :
webinar@meboresearch.com
go to your paypal account and send donation as 'a gift' to :
webinar@meboresearch.com
For updates, see the Nashville body odor conference blog posts
MeBO Research is a sufferer-founded international campaign to research systemic body odor. It is a non-profit, limited by guarantee company registered in England aiming to become a charity with donations awarded by its members and volunteer fund raisers. Within only months of MeBO's inception, research was underway with the gracious contributions of volunteer testers, discounted test rates, and pro-bono services by experts. Once MeBO Research becomes a registered charity, it will be in a better position to fund-raise for large research grants and endowments in order to further its research efforts.
Mission
MeBO aims to informally research, to encourage and support formal professional research, and to raise international social and political awareness of systemic body odor and halitosis problems, with co-operation from the online body odor community, as well as to also complement similar campaigns. MeBO's focus is primarily on systemic body odor, since this seems to be the the most common form amongst the online community. Special attention is placed on fecal body odor, gas, sulfur/rotten egg, garbage, sewage, and fish odors, which many seem to suffer from, including those with Trimethylaminuria, since TMAU may not be a final diagnosis as often sufferers say they smell of other smells.
Strategies
MeBO's three main strategies are :
1: Self-help : This involves ways in which sufferers can research the problem as a group. An example would be peer-driven informal studies through MeBO, to actively look for a profile of systemic body odors, as well as promoting a test culture in the community. This could include help from professionals and experts.
2: Professional help : Proactively encourage and support professional research. For instance, official trials by experts sponsored by grant-making government and private bodies.
Research MeBO would like to see done by experts
Intended to give experts ideas for research:*Develop genetically modified probiotic enriched with FMO3,
*To develop helpful ways of coping with the problem, such as portable smell-checkers.
*Founding of an Intenational Body Odor research center & clinic (perhaps including Halitosis)
*An agreed international testing standard for TMAU
*Investigation of other malodourous compounds as possible odor sources in humans, such as isovaleric acid
*International database of TMAU results
*Are all women with lower functioning FMO3 enzyme prone to Bacterial (Gardnerella) Vaginosis ?
*How does TMAU affect choline blood levels, including before diagnosis ?
*Add trimethylaminuria to the newborn screening program
*Malodorous volatile organic compounds testing (including a study)
1 person or more to have their urine tested over a month for Volatile Organic Compounds
Test those 'diagnosed' as 'Olfactory Reference Syndrome' for TMAU
If you are an interested expert with any ideas, feel free to contact MeBO
3: Raising awareness : Promote international recognition of metabolic body odor and halitosis through various formats, for example, media awareness and political influence, etc. A key object is to get all metabolic body odors recognised as an official health problem, the same way any other health problem is recognized.
The alternative is to maintain the status quo, i.e., waiting for the scientific / medical system to come up with significant funding and research for us on its own initiative, which is a very unrealistic possibility.
MeBO short term goals
*To do informal case studies using available tests on volunteers,
*To post the results in this website,
*To develop relations with experts.
MeBO long term goals
*To become a charity,
*An international body odor & halitosis clinic and research center,
*To encourage professional research into metabolic body odor,
*To develop helpful ways of coping with the problem, such as portable smell-checkers.
